New tools of the trade: NIH All of Us Research Program and the promotion of health equity research

Authors

• AS Alfarano
• RS Baskir
• SJ McMaster
• KS Watson

Abstract

The All of Us Research Program (All of Us) is an historic effort to collect data from one million or more people living in the United States and its territories, that prioritizes inclusion of populations historically underrepresented in biomedical research to accelerate precision medicine and advance health equity. As of July 2024, 80% of participants are underrepresented in biomedical research by self-identified race, ethnicity, age, geography, sexual and gender identity, income, education, access to healthcare, and/or disability status.

Since May 2020, more than 11,300 researchers from 800 institutions have registered to use the Researcher Workbench (Workbench). The Workbench offers access to various data types including genomics, electronic health records (EHR), physical measurements, wearables, and survey data on lifestyle, access to care, COVID-19 experiences and social determinants of health, available through a series of data releases. The forthcoming data release, scheduled for Fall 2024 and known as the Curated Data Repository, will include data from a larger number of participants, additional genomic data, and new data types. In addition to increases in array data, srWGS data, and long-read sequences, this release will include data from expanded EHR sources, digital health technologies devices, a new Life Functioning Survey, and importantly, racial and ethnic subcategories.

This poster will update NIH scientific audiences on planned data expansions. Attendees may identify opportunities to conduct health research utilizing Workbench data, leverage existing resources to support research projects, and gain insight into All of Us’ commitment to participant and researcher diversity.

Scientific Focus Area: Research Support Services

This page was last updated on Tuesday, August 6, 2024