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NIH Research Festival

September 14 – 16, 2016

A Picture is Worth a Thousand Words: Development of an Informed Consent Graphic Aid Glossary

Thursday, September 15, 2016 – Poster Session II
12:00 – 1:30 p.m.

FAES Terrace

NIAID

RSCHSUPP-9

Authors

  • DG Chaitt
  • JF Pierson
  • SL Kopka
  • JP Meyer
  • TJ Miller

Abstract

The challenges of informed consent documents, including the length of the document, readability, and comprehension is a recognized theme addressed in a substantial body of literature and conferences related to human subject protections. Acknowledging that requirements based on regulations and incorporation of legal language are not negotiable, and in preparation for the enforcement of the Notice of Proposed Rulemaking issued in 2015 to employ a more meaningful informed consent, the NIAID IRB Office and Protocol Development Program deliberated on creative and applicable methods of information disclosure. Meaningful consent requires that a patient be given sufficient understandable information to make a valid choice. Discussions resulted in adding a visual style of learning to a primarily linguistic informed consent process. A pictorial glossary was created with graphics that enhance communication of both common procedures, such as phlebotomy, and complex interventions, such as randomization, conducted as part of research protocols within NIAID. Graphics can be modified to be culturally and age appropriate. The glossary and any associated changes are reviewed by the IRB prior to use. The graphics can also be uploaded to laptops, iPADs and iphones for the paper adverse participant. Appreciating a trend toward a complete electronic consent document, future approaches will include other visual media, such as videos.

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This page was last updated on Friday, March 26, 2021

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Download the 2016 Research Festival Schedule Overview (6 pages)

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Current Research Festival

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  • 2024
    • General Schedule of Events
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    • Special Wednesday Events
    • Vendor Exhibit Information
    • Green Labs Fair
    • Research Festival Committee
  • 2023
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    • NIH Early–Career Investigator Lectures
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    • General Schedule of Events
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    • Technical Sales Association (TSA) Research Festival Exhibit Tent Show
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  • 2018
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  • 2017
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    • Plenary Sessions
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    • Technical Sales Association (TSA) Research Festival Exhibit Tent Show
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  • 2016
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    • Browse by Presenter Name
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