Increasing awareness of NIH clinical research to improve participation in trials: Extending new collaborations

Thursday, October 11, 2012 — Concurrent Symposia Session IV
Noon – 2:00 p.m.	Conf. Room D

Chair

• Marin Allen, OD

Program

The challenge of recruiting research participants has serious implications for the success of research and the reputation of the NIH. NIH data indicate that 85 percent of trials do not finish on time due to low patient participation, and 30 percent of trial sites fail to enroll a single patient. This presentation will describe recent results from formative research done on current public and physician attitudes and an environmental scan of current practices, including issues regarding the responsible implementation of new and social media. A centerpiece for the discussion is the new collaborative, public website; the growing relationship with the American Medical Association, ClinicalTrials.gov and ResearchMatch; and strategies for public engagement. Panel members will discuss the overall project, the research results, the key collaborations, the Clinical Center staff efforts and engage the audience in a discussion of the needs of the intramural community in recruitment strategies.

Deputy Associate Director for Communications and Public Liaison and Director of Public Information NIH
Marin Allen, OD

Chair, Combined NeuroScience IRB NIH
Barbara I. Karp, OD

Chief, Patient Recruitment and Public Liaison Section NIH Clinical Center
Dinora Dominguez, CC

Lead, Public Affairs Office of Communications, Patient Recruitment and Public Liaison NIH Clinical Center
Kelli Carrington, CC

TBA
FARE Award Winner, OD

Deputy Director Office of Communications & Public Liaison National Library of Medicine National Institutes of Health
Melanie Modlin, NLM

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